We are trying to connect patients around the world. I feel that this is so important. I saw a patient from Europe who might have Wolfram syndrome the other day. She was intelligent and thoughtful. She was multi-lingual. I could feel that she felt isolated and wanted to do something on this issue. The Snow Foundation has been creating the Social Network System to achieve this. I will keep you updated about our progress.
I hope you have a wonderful day.
Take care,
Fumi Urano