Do we know the challenges of our patients and their families?

Do we know the challenges that patients and their families are facing? I feel that I only know the tip of the iceberg. I may know their symptoms and some underlying mechanisms, but I realized yesterday that I knew very little about their emotional and personal challenges. I thought I knew, but I realized I knew very little.

Please help us raise awareness and funds for Wolfram syndrome research. We need treatment for our patients. We are racing against time. Please help us. A cure for Wolfram may lead to breakthrough treatment for diabetes and neurodegeneration.

Take care,

Fumi Urano