Social network for the Wolfram syndrome community

I am working with the Snow Foundation to create a social network just for the Wolfram syndrome community. The new website will provide a place for the Wolfram syndrome community to share questions, tips, ideas, experiences, encouragement, and HOPE. If you have any ideas or questions, please send me email to “”. We would like to help our patients.

Thank you for your continued support. I read every email from you and try to respond to you as soon as I can. I appreciate that you share your experiences and questions with me. It is my privilege to see patients with Wolfram syndrome.


Fumi Urano