I often feel frustrated. I believe that we are doing the right thing. It is important to develop novel treatments for Wolfram syndrome although this is an ultra rare disease. It is not good enough to know how to manage our patients’ conditions. I feel frustrated because some people don’t understand that it is urgent to develop new treatments. They don’t have Wolfram or don’t have children with Wolfram. All we can do is to keep on moving forward to accomplish our goals, Raise Awareness, Improve Clinical Care, and Develop Novel Treatments for Wolfram syndrome. A cure for Wolfram will lead to a cure for diabetes.
Thank you for your continued support. I hope more people will support us.
Take care,
Fumi Urano