Resources

The Wolfram Syndrome Association (France) is an organization dedicated to supporting medical research and families affected by Wolfram syndrome.

To accelerate the discovery of treatments and cures for Wolfram Syndrome and eventually other rare and ultra-rare diseases.

Mission: To fund research to develop a cure for Wolfram Syndrome and other rare genetic disorders.

The Foundation’s mission is to stimulate and support the research for treatments that can stop the progression of Wolfram Syndrome as well as treatments that will restore the damaged cells.

The Jewish Wolfram Network is dedicated to raising awareness, advancing research and supporting families affected by the Ashkenazi subtype of Wolfram syndrome. Our mission is to connect patients, caregivers, medical professionals and researchers to foster understanding, accelerate medical breakthroughs and improve the lives of those living with this condition.

The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration.

We have established The Unravel Wolfram Syndrome Fund through Washington University in St. Louis School of Medicine to provide financial support for Dr. Fumi Urano’s research group as they work to secure new treatments and ultimately a cure for Wolfram syndrome.

This website is intended to inform those affected, relatives or interested parties about the rare Wolfram syndrome, its symptoms, possible course and possible treatment methods as well as the current state of research.

Our aim is to raise as much awareness of this syndrome as we can.