Please contact the following physicians to refer patients or make an appointment. They have agreed to accept patients with Wolfram syndrome. If you have trouble making an appointment, please send an email to Dr. Fumi Urano, urano@wustl.edu or call 314-362-8683. We will help you.
United States
Illinois
Louis Philipson, MD, PhD
Director of Kovler Diabetes Center
Professor of Medicine
University of Chicago Medical Center
Phone 773-702-2371
Massachusetts
Gena Heidary, MD, PhD
Ophthalmology/Neuro-Ophthalmology
Boston Children’s Hospital
300 Longwood Avenue
Fegan, 4th Floor
Boston, Massachusetts 02115
Phone 617-355-6401
Benjamin U Nwosu, MD
Associate Professor of Pediatrics
UMass Memorial Medical Center
55 Lake Avenue North
Worcester, MA 01655
Phone 508-334-0412
Christy Stine, MD, PhD
Pedi-Neurology
UMass Memorial Medical Center
55 Lake Avenue North
Worcester, MA 01655
Phone 774-442-5695
Mitchell Strominger, MD
New England Eye Center
Tuft University School of Medicine
Phone 617-636-6769
Missouri
Robert Bucelli, MD, PhD
Neurology
4921 Parkview Place
6th Floor Suite C
St. Louis, MO 63110
Phone 314-362-6981, Fax 314-362-0338
James Hoekel, OD
Optometry
St. Louis Children’s Hospital
1 Children’s Place
St. Louis, MO 63110
Phone 314-454-6026
H. Henry Lai, MD
Urology
Center for Advanced Medicine – Urologic Surgery Center
4921 Parkview Place
11th Floor Suite C
St. Louis, MO 63110
Phone 314-454-8149, Fax 314-454-5244
Barnes-Jewish West County Hospital – Medical Building 4
1044 North Mason Road
Suite 230
Creve Coeur, MO 63141
Phone 314-362-8200, Fax 314-361-2203
Christian Hospital – Medical Office Building 1
11155 Dunn Road
St. Louis, MO 63136
Judith Lieu, MD
Otolaryngology
St. Louis Children’s Hospital
1 Children’s Place
3rd Floor
St. Louis, MO 63110
Phone 314-454-6162, Fax 314-454-2174
St. Louis Children’s Specialty Care Center – West County
13001 North Outer 40 Road
Town and Country, MO 63017
Phone 314-454-6162, Fax 314-454-2174
Bess Marshall, MD
Pediatric Endocrinology
St. Louis Children’s Hospital
1 Children’s Place
2nd Floor Suite D
St. Louis, MO 63110
Phone 314-454-6051, Fax 314-454-6225
Toni Pearson, MD
Pediatric Neurology
St. Louis Children’s Hospital
1 Children’s Place
2nd Floor Suite 2130
St. Louis, MO 63110
Phone 314-454-6120, Fax 314-454-2523
Angela Reiersen, MD
Pediatric Psychiatry
4444 Forest Park Avenue
2nd Floor Suite 2600
St. Louis, MO 63108
Phone 314-286-1700
Greg Van Stavern, MD
Neuro-Ophthalmology
Barnes-Jewish Center for Outpatient Health
4901 Forest Park Avenue
6th Floor
St. Louis, MO 63108
Phone 314-362-EYES, Fax 314-362-3725
Stephen Stone, MD
Pediatric Endocrinology
St. Louis Children’s Hospital
One Children’s Place
2nd Floor Suite D
St. Louis, MO 63110
Phone 314-454-6051, Fax 314-454-6224
Fumihiko Urano, MD, PhD
Medicine, Medical Genetics and Genomics, Endocrinology and Diabetes
Washington University Medical Center
660 South Euclid Ave, Campus Box 8127
Phone 314-362-3500, Fax 314-747-3065
Neil White, MD
Pediatric Endocrinology
St. Louis Children’s Hospital
One Children’s Place
2nd Floor Suite D
St. Louis, MO 63110
Phone 314-454-6051, Fax 314-454-6225
Nebraska
Kevin Corley, MD
Children’s Diabetes & End Clinic
8200 Dodge St.
Omaha, NE 68114
Phone 402-955-3871
Lorraine L Edwards, MD
Central Nebraska Neurology, P.C.
2727 W 2nd St., Suite 340
Hastings, NE 68901
Phone 402-463–1250
Lynn Mack, MD
Associate professor
Division of Diabetes, Endocrinology and Metabolism
984130 Nebraska Medical Center
Omaha, NE 68198-4130
Phone 402-559-9504
Jon J Morton, MD
The Urology Center, PC
111 South 90th Street
OMAHA, NE 68114-3907
Phone 402-397-9800
Fax 402-397-7591
Danita Velasco, MD, FAAP, FACMG
Clinical Geneticist, Assistant Professor
Andrew Schmanski, MS, CGC
Genetic Counselor
Pediatrics and Munroe-Meyer Institute for Genetics & Rehabilitation
University of Nebraska Medical Center
985440 Nebraska Medical Center | Omaha, NE 68198-5440
402.559.3446 | fax 402.559.6688
dvelasco@unmc.edu
New York
Mary Pat Gallagher, MD
Director, Robert I. Grossman, MD and Elisabeth J. Cohen, MD Pediatric Diabetes Center
At Hassenfeld Children’s Hospital at NYU Langone
135 East 31st Street, 2nd Floor
New York, NY 10016
T 212-263-9910 | F. 646-754-9973
North Carolina
Mays Dairi, MD
Associate Professor
Neuro-Ophthalmology
Pediatric Ophthalmology and Strabismus
Duke Eye Center
Phone (919) 684-0816
Email mays.el-dairi@duke.edu
Ohio
Suzanne D DeBrosse, MD
Center for Human Genetics
University Hospitals Case Medical Center
11100 Euclid Ave.
Cleveland, OH 44106
Phone 216-844-3936, option 2
Fax 216-844-7497
Sumit Parikh, MD
Director, Neurogenetics & Neurometabolism
Cleveland Clinic
9500 Euclid Ave., S60
Cleveland, OH 44195
Phone 216-444-1994
Oregon
Brian Ricci, MD
Assistant Professor of Medicine
Oregon Health & Science University
Portland, Oregon
Phone 503-494-8562