The rare disease day is approaching. I would like express my deep appreciation and gratitude to multiple patient organizations supporting my research. I will keep on working with them to improve clinical care, raise awareness, and develop novel treatment for Wolfram syndrome.
Ellie White Foundation for Rare Genetic Disorders (USA)
Worldwide Society of Wolfram Syndrome Families (USA)
Wolfram syndrome Italia (Italy)
Thank you again.
Take care,
Fumi Urano