I was watching this video yesterday. This is a story about Jennifer, a British girl with Wolfram syndrome, and is extremely moving. I hope you WATCH< this. You will be struck by the huge amount of medical supplies at her house. You will understand her and her family’s CHALLENGES. I met her family in England a few weeks ago. Her parents, Tracy and Paul Lynch, created the Wolfram syndrome UK to raise awareness and funds for Wolfram syndrome research. I was moved by them. I was moved by Stephanie and Barclay who started the Snow Foundation and came to Washington University. There is an urgent need to develop treatment for Wolfram syndrome. Please help us.
Thank you for reading this blog. I hope you have a wonderful day.
Take care,
Fumi Urano