Many people help us raise awareness of Wolfram syndrome. If you know Type-1-diabetes patients who have other unusual symptoms such as optic nerve atrophy, please contact us. They may have Wolfram or other unusual forms of diabetes. They may need different treatments.
One of the major challenges for physicians is to provide answers to patients with mysterious conditions that have long eluded diagnosis. Patients suffer from mysterious conditions without diagnosis and effective treatments. Many of our Wolfram patients experienced this. So we need to keep on raising awareness of Wolfram syndrome and other rare genetic diseases. Please help us spread the word.
Thank you for reading this blog. I am sending kind thoughts toward you. Take care, Fumi Urano