I was reading a blog written by Lauren, one of our Wolfram syndrome patients, yesterday. After I read it, I felt calm and serene. I was exchanging email with Anne Harkin, Vice President of Operations of the Snow Foundation. Anne is a compassionate and wonderful person who has been raising awareness of Wolfram syndrome with us. Both of us agreed that Lauren has a great way of sharing her stories and everyday struggles – all with a sense of humor. I recommend that you read the following blog.
Living With Wolfram Syndrome – Lauren Gibilisco
Thank you for reading today’s blog. I hope you have a wonderful Sunday. I am thinking of you.
Kindly,
Fumi Urano