The Snow White Fellowship

Recently, the Ellie White Foundation hosted a fundraising event for Wolfram syndrome to raise funds for accelerating the development of drug therapies. The funds will support our Snow White Fellowship in collaboration with the Snow Foundation. I always appreciate supports from the patient organizations all over the world. They work together to accomplish the same goal, A Cure for Wolfram. Three things are always on my mind, Raise Awareness, Improve Clinical Care, and Develop Novel Treatments. Dr. Barrett in England and I have established the International Wolfram Syndrome Consortium to prepare for the future clinical trials. We will closely work together to achieve our goal.

Thank you for reading this blog. I am grateful.

Kindest regards,

Fumi Urano